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Patient and Community Advisory Committee

The Patient and Community Advisory Committee (PCAC) comprises of individuals with lived experience with the Canadian health care system and who are familiar with issues in health care in Canada. PCAC provides CADTH with advice on issues relevant to its mandate, from the perspective of those using the Canadian healthcare system.

PCAC Terms of Reference

Membership

Chair

Marney Paradis, Yukon

Marney ParadisMarney Paradis is the Executive Director of Habitat for Humanity Yukon and a Doctor of Education candidate at the University of British Columbia, where her philosophical inquiry focuses on the intersection of anti-oppressive, community-based, and spiritual support systems within frameworks of health advocacy.

Marney has a son who lives with type 1 diabetes and she is the President of Yukon T1D Support Network — a non-profit group she helped found to provide education, advocacy, and support to people in Yukon with type 1 diabetes.

Conflict of Interest Disclosure — Marney Paradis

Vice-Chair

Zal Press, Ontario

Zal PressZal Press is the Executive Director of Patient Commando, an organization dedicated to lifting the veil of silence that so often accompanies the onset of illness. He was the founding co-Chair of The Beryl Institute Global Patient and Family Advisory Council, which works to ensure that the voices of patients and families are a central consideration in the strategic direction and offerings of the Institute.

Zal has lived with Crohn disease for more than 38 years. He is passionate about illustrating the need for improved health care policy and delivery by sharing stories that enrich our appreciation of the lived illness experience.

Conflict of Interest Disclosure — Zal Press

Members

Mary Reeves, New Brunswick

Mary ReevesMary Reeves is a retired education administrator and mediator, and an active volunteer in her community. She is a founding member of the Grand Bay-Westfield Age Friendly Communities Committee, and a past Board member of the Sophia Recovery Centre — a support centre for women recovering from addictions.

Mary lives with osteoarthritis and vision impairment, and is aware of the challenges of staying independent as she and her husband age.

Conflict of Interest Disclosure — Mary Reeves

Jonah Dupuis, Ontario

Jonah DupuisJonah Dupuis is a community pharmacist in Northwestern Ontario who has previously served as a councillor on Nipigon's Town Council and as  the Director of Pharmacy at the Nipigon District Memorial Hospital.

Jonah is a proud member of the Anishinabek Nation and currently works in a travelling health team that delivers primary health care directly to First Nations communities. He is also a caregiver for his son who lives with a rare genetic condition.

Conflict of Interest Disclosure — Jonah Dupuis

Marlee McGuire, British Columbia

Marlee McGuireMarlee McGuire is a medical anthropologist and a doctoral student at the University of British Columbia, where her research focuses on the politics of rare diseases though multi-stakeholder perspectives, including patient and public payer perspectives.

Marlee has navigated systems around addiction and chronic conditions as a family member.

Conflict of Interest Disclosure — Marlee McGuire

Devan Nambiar, Ontario

Devan NambiarDevan Nambiar, MSc, is an education and training specialist on LGBT2SQ+ health and HIV care for organizations, clinicians, and allied health professionals through Rainbow Health Ontario, Sherbourne Health, and his own consultancy, GHIS.CA. He co-wrote four HIV national publications at CATIE, has served on the Community Advisory Committee for the Canadian Institutes of Health Research Canadian HIV Trials Network, HIV Research Ethics Board at the University of Toronto, as well as on the Boards of the Alliance for South Asian AIDS Prevention and CTAC‒Canadian Treatment Action Council.

Devan is a South Asian gay man who has been living with HIV for 34 years.

Conflict of Interest Disclosure — Devan Nambiar

Marilyn Barrett, Prince Edward Island

Marilyn BarrettMarilyn Barrett is the Director of the Health & Wellness Centre at the University of Prince Edward Island. She is a retired community nurse and the former Director of Primary Care for Health for Health PEI.

Marilyn has been a caregiver to multiple family members, which required out-of-province care for health treatment.

Conflict of Interest Disclosure — Marilyn Barrett

Lilian Hulme-Smith, Ontario

Lilian Hulme-SmithLilian Hulme-Smith is a retired public servant, who spent the bulk of her career in social and supportive housing administration and risk management. She is a member of the Mackenzie Health Mackenzie Richmond Hill Hospital Patient Advisory Committee and Medication Safety Committee, as well as a patient advisor at the Central Local Health Integration Network.

Lilian lives with primary-progressive multiple sclerosis.

Conflict of Interest Disclosure — Lilian Hulme-Smith

Beth Kidd, Alberta

Beth KiddBeth Kidd is the Executive Director of Health Coalition of Alberta, representing more than 90 health charities, as well as individuals, that advocate for improved access to care and greater patient engagement.

Beth lives with chronic migraines and is a Board member of Migraine Canada and Dementia Network Calgary.

Conflict of Interest Disclosure — Beth Kidd

Sarah Sandusky, British Columbia

Sarah SanduskySarah Sandusky is a fundraising and communications specialist with extensive experience working with non-profit organizations focused on homelessness, addiction, mental illness, health, education, and human rights. She previously held leadership roles with the Dr. Peter AIDS Foundation in Vancouver, BC Civil Liberties Association, Street League in the UK, and Eva’s Initiatives for Homeless Youth in Toronto.

Sarah is now a freelance facilitator and fundraising strategist based in British Columbia. She is a Board member of Pain BC and has experienced the impact of chronic pain both personally and professionally.

Conflict of Interest Disclosure — Sarah Sandusky

David McMullen, Ontario

David McMullenDavid McMullen is a retired engineer and manager with Ontario Power Generation.

David has been a multiple myeloma patient since 2012. He is very active with Myeloma Canada, contributing to its objectives of patient and caregiver education and support, research, access to treatments, and awareness. David was the founding Chair of the Myeloma Canada Patient Advisory Council. He has leadership and advisory roles in several myeloma patient support groups. He is also a patient representative in the Canadian Cancer Trials Group.

Conflict of Interest Disclosure — David McMullen

Paula Orecklin, Manitoba

Paula OrecklinPaula Orecklin is a disability advocate who shares her experiences living with a disability with youth as a Rick Hansen Foundation Ambassador. She is also a patient and family advisor with the Winnipeg Regional Health Authority.

Paula lives with chronic pain and is involved in the DAWN‒DisAbled Women’s Network and the Manitoba League of Persons with Disabilities.

Conflict of Interest Disclosure — Paula Orecklin